Sing It Loud, Say It Proud

I don’t do this for myself. I do it for my children. For my daughter who will have her own children one day and may suffer as I did.

You never know what will happen when you reach out to someone. Not everyone is ready for a true friend. It’s taken me a long time to realize this. I still don’t understand it and take it personally more often than not.

I’m a transparent person. I have hurdles I have to overcome, battles I need to fight and I am an imperfect person something I don’t try to hide. I worry sometimes I come across as a toddler yelling “I make mistakes!” with a wide sunny grin as though it were a gift. Perhaps I do come across that way sometimes however I don’t think that’s something to apologize for. One thing about making mistakes is at least you know you’ve tried to DO something. You’ve tried to make a thing happen even if you bungled the entire operation from start to finish. Some mistakes are worse than others obviously. Still we learn from them, however hard the lesson.

My continual need to reach out to other people and share my story with them and hear theirs is just part of me, it’s who I am because of how my life has been. The joy I’ve experienced when I share what I’ve been through and someone else shares what they’ve been through with me and we each accept, forgive and love each other despite those scars is nameless. It literally cannot be touched. Because of this however, when I see an opportunity for that level of happiness and my attempts are met with a firmly closed door, or worse a mere dismissal as if my olive branch never existed I am so crushed, I feel so rejected that it’s hard to LET IT GO. I can’t MOVE ON. I want to know why I couldn’t reach them. Why they wouldn’t let me in.

The truth is, it isn’t about me. It isn’t about me at all. There are a million and one reasons why someone keeps the doors of their life closed and the shades of their heart drawn even against the brightest, most beautiful days. It’s their right to take solace behind a locked door. Just because I want them to feel the sun with me doesn’t mean they have to and it doesn’t mean that sunlight is any less beautiful. It’s just the way of things. It’s the way people are. For someone who is used to hiding, used to pretending to be “perfect” my openness and consequent awareness is off-putting. What? They say. How do you know me so well? Only because I am you I think. Only because I used to try to hide too.

This is how it is battling bipolar disorder. Battling anxiety, depression, self doubt. Battling any mental illness really. Once you accept that you need help and you ask for that help and you receive it, you want to share it with everyone else. And you become adept at spotting the same illnesses, the same broken pieces in others. You want to help them too. Even when they don’t want anything you have to give. Because part of the struggle is learning to break open that rusty lock and connect with others who feel the way you do.

I’m on a journey. I used to take a multitude of pills just to stay stable. Things are different now. It’s important to note I have been working with medical professionals and no one should ever EVER just stop taking their medication. I just happen to have a big mouth and a refusal to accept a regimen that isn’t working for me (restless legs, 50 lb weight gain, the inability to write, etc) So I used my big mouth and about a thousand phone calls and I now take one pill for my bipolar (lithium), one (will likely become two) pill for my raging ADHD (vyvanse), two for the anxiety brought on by OCD (gabapentin & klonopin) and one for sleep (lunesta). I actually tried ambien and had a psychotic reaction to it so if this has happened to you you’re not alone. I took the pill and 30 minutes later I told my husband- “The eye told me you have bodies buried in the yard.” Needless to say I never took it again.

Sleep is so elusive but my God it’s so vital especially when you’re battling mental illness. But who can sleep when there’s so much to do, so much to think about and everything whirls around in my head like a carnival ride you can’t get off of. It’s important to note that sleeping pills are EXTREMELY dangerous. The wrong one can change you into a psychotic mess. And if you’re extremely depressed, in large doses they will kill you.

I wrote in a past blog about how lucky I was and how much I loved my doctor. Well as usual nothing lasts. This is what we as people who suffer these illnesses go through. I put my entire trust in her and our last appointment she told me that although she was reducing her case load she would never drop me as a client. A week later I got a phone call from her office saying she would no longer be seeing me, I was referred to a new doctor and the earliest appointment would be in three months. I thought well of course that happened. So for the last two and a half months I have become best friends with the certified medical assistants who have been my bridge over this doctor-less sea of side effects and dosage problems. Insurance issues and complete frustration and loss of faith. If you ever see a CMA give them a hug. I don’t know what I would have done without them.

All is not lost however. I found out that this new doctor is an osteopath who specializes in treating people with psychiatric conditions using a combination of traditional western medicine and alternative natural remedies. Hallelujah! Praise the Lord! I may have hit the jackpot! I have been praying for this since I got sick. Because there are not just these diagnoses that hang over me like a witch’s cloak. I have polycystic ovarian syndrome. At the time I was diagnosed with Bipolar 1 I was suffering extreme postpartum psychosis, WHICH can last UP TO THREE YEARS. I also have uterine prolapse so I only ever go two to three days maximum without bleeding like a stuck pig. I also have cysts all over my thyroid so prominent you can see one of them sticking out of the side of my throat! Hmmm. How many conditions could the side effects of what I am going through mimic? How many doctors would want to throw pill after pill at me clueless as to why they don’t work? I’m not saying I’m not bipolar. I really don’t know where I fall on the spectrum of mood and mental disorders. I’ve learned that a pregnancy can shift a mild case of bipolar 2 into a severe case of bipolar 1. I do have many of the symptoms. I also have many of the symptoms of the other conditions I’m suffering. So who knows and really I HATE labels. We’re all humans dealing with different levels of hardship and whatever you call yourself, judgment and stigma must be erased from our vocabularies.

What I’m trying to say is that there may be more ways of treating your condition whatever it may be, beyond just pills. On top of pills. On top of pills.

I know I’m not alone. That’s why I’m speaking out. In the Netherlands their schizophrenic people remain integrated into society. People treat them with kindness. The reorient them into reality as a whole, as a group, rather than locking them away. Studies show they get better! They regain their grip on who they are and what is real. Now I can’t say that would work for everyone. It would be amazing but this society is so diversified and disconnected I have a hard time believing what works in a homogeneous social system would work here in the melting pot that is America. But the lesson is in their lack of judgment. The person is sick. Not evil, not gross, not to be shunned and avoided. Just sick. That’s all. It’s so simple.

When I was hospitalized I went on social media and asked for visitors. I asked for flowers. I let everyone know where I was and that I was lonely for companionship. One loving couple came to see me with flowers and a balloon. My aunt Nycki and Uncle Tom. They brought a card for Alice. Do you know why they came? Because their son suffers from a mental illness and they were not afraid of the behavioral health ward. Which by the way is calm, clean, full of loving nurses and good people. People who are ill just like anyone else. There are children and husbands who come and spend time with their mothers. They bring games and cookies. They bring the freedom of the outside. Their are girlfriends who come to see their boyfriends with paper bags full of sweatshirts, headphones, love letters. They hug each other. Long embraces. Everyone looks away as the tears roll down their cheeks. Usually one of the older female patients will bring tissues. Sometimes a tiny carton of juice. Of course there are the patients who sit in their rooms during visiting hours. Because no one is coming. That was never me. Even though none of my friends came, my aunt and uncle did. And my family was there for every visitation. I even had a birthday cake with real candles in my room surrounded by them. Another Aunt and Uncle sent flowers. A dear friend from high school sent flowers. He was in Hawaii and unable to visit. But he made sure to let me know he cared. But none of my friends came. Most of them ignored my obvious distress. I thought to myself here I am in the hospital, having been diagnosed with a disease deadlier than cancer and hardly anyone seems to care. But that’s how it is. People hear the word bipolar and they want to get as far away from you as possible. Women hide their postpartum conditions out of the very real fear of judgment. And then they end up in the hospital crying over why it has to be this way while their visiting babies fill up the ward with their sounds of new life.

For all of these reasons I sing out my story. I tell anyone who will listen about what I’ve been through, what I’m going through and what I have yet to overcome. I don’t do this for myself. I do it for my children. For my daughter who will have her own children one day and may suffer as I did. I do it for all the other people struggling under the weight of their diagnoses, their medications, doctors who don’t listen, friends who don’t care. I will never be quiet. And maybe just maybe things will change.

Gone but only for a while

I tell myself I should be grateful. That even though I have to say goodbye, at least I’ll get to say hello again.

My middle son Elliott boards a plane tomorrow. To the sound of breaking hearts everywhere. Every day I wake up and wish his father hadn’t moved across the country. But some things can’t be helped.

I tell myself I should be grateful. That even though I have to say goodbye, at least I’ll get to say hello again. I wish that logic worked. All I feel is an empty place that only he can fill. We went to the trampoline park yesterday. It was the most fun I’ve had in I don’t know how long. It was as if we both forgot he was leaving for these few precious hours and just let go. Sailing from square to square, bouncing like kangaroos, playing virtual video games, running all over the park like little kids…it doesn’t get better than that. Later we watched Brooklyn 99 and I twisted his hair. We stayed up until two in the morning. Laughing, talking, doing his hair, making memories.

Of course nothing lasts forever. Every time my roses bloom I clip them faithfully, making fragrant and colorful bouquets. They’re beautiful. Until they’re not. Until their petals begin to fall. Until they curl and brown at the edges. Nothing lasts forever so we must make each moment count. I remember when Elliott was a baby, soft and fat and gorgeous. Big blue eyes, a wide engaging grin…the easiest baby you could ever ask for. It’s hard to believe he’s as a tall as I am now. That he can’t seem to eat enough tacos. That he broke my heart by going to Oregon and never coming home.

It’s been a hell of a summer. My daughter is operating on all cylinders, my mother took off for a month in Spain, I have a hysterectomy scheduled in early September because I can’t stop bleeding. Luckily yesterday it was mild enough that I could forget about my pain. At least for a little while. My oldest son was here for a month and barely made it that long. He says he’ll visit when he’s older. Unless I move I don’t see that happening. He hates Alaska with a passion. I am forced to watch him grow up on Instagram and Facebook. It’s about as painful a thing as you can imagine. All I can think is he’s my son. He’s my son. How is it I don’t get to raise him? How is it that I missed straightening his tie for his first homecoming dance? That I’ve never seen a concert or a play he’s been in? That I have to beg and plead for recordings and videos that never come? That he and his brother didn’t even send me a card for mother’s day and FaceTimed me with horrible reception while working on their stepmother’s mother’s house as though I mattered as much as a pebble on the ground? My head echos with these truths unceasingly. I have to remind myself that life is a lot of things but fair is not one of them.

I feel angry. I feel hurt. Most of all I feel lost. I feel lost when I hear mothers talk about taking their teenagers to football practice or guitar lessons. When they complain about their messy rooms. When they snap pictures of them with their girlfriends. I can’t relate to these women. My sons were ripped from my life and I’ll never know those moments. I don’t get that time. They’re growing up without me, being raised by another woman. In another state. And I am powerless to change it.

It hurts most when I think of my daughter. She can be moody as hell but she loves her brothers fiercely and when they are gone all she does is talk about when they’re coming back. I never wanted it this way. They live with their stepsisters and often it feels like they forget their blood sister even exists. They’ve never even gotten her a present. Not even a card. They don’t call her. They don’t realize what it’s like to be a little sister who’s brothers were there one day and gone the next.

I’ve felt like throwing up every day for the  past week. I’m not pregnant. My husband thinks I’m just heartbroken. The body has funny was of dealing with pain and stress.  And mine apparently chooses for me to feel like I’m going to throw up on the floor.

However time marches on. I wanted to work on music with my son. It never happened. He just wasn’t here long enough. He had overnights with friends, parties here, parties there, a little sister to play with and everything else that gets in the way of everything you try to do. Maybe one day.

My consolation in all of this is that despite the distance I know my sons love me. They may be forgetful and even selfish as most teenage boys are but the love is there, the bond remains unbroken. I like to imagine one day playing with my grandchildren, the pain of the past a distant memory. My sons seem to be growing and thriving which on one hand hurts because I selfishly want them to need me more, but on the other hand and the most important point is that they are well, happy and cared for. I would never interfere with a son’s need to be near his father. That relationship will shape the men they will become.

As I said before I clip and prune my roses when they have bloomed fat and fragrant. The hardest part is waiting for the new blooms to open and cover the bush with beauty. It’s the same way with my sons. They come to me full of blooms and I gather them up and breathe them in, every last bit of them. They leave their blossoms all over my heart. All over their sister’s heart. And then when they have given all they can and the clock strikes the time of leaving I watch them go, still strong, green leaves and branches with the tender buds I sowed that will grow over the long months until I see them again full of new life. Until then I can only love them, miss them and wonder what color their roses will be next.

The Other Side of Beautiful continued

Her mother stayed home with her, hating every minute of it. Everything about her was cold and disapproving. Everything but her food.

The graceless way her life had developed was not novel. It was not even unusual. Her world seemed to the onlooker like a once delicate, yet slightly tragic garden overgrown and marked by neglect. She thought about how she saw pain and loss in each direction she looked. Her failures sprung up all around her, as the only flowers left in her sad little garden. The petals were colorless and with twisted stems, choked by weeds and sorrow.

Her mother wanted little to do with her, Her father even less. Often as a child she felt like there was some kind of clear partition between she and them. At the dinner table they would sit there, her father reading any one of a number of articles on corporate finance, the rise and fall of whatever company, international trade. Her mother would smoke cigarette after cigarette, her mouth a thin angry line. Sometimes the line would open. “Eat your peas.” Her mother would eye the pile of green orbs she kept piling on top of one another and letting roll back onto the plate. Her mother was an excellent cook. But Arabella was lonely. A battle over peas was better than nothing.

“I don’t like peas.” She would answer defiantly craving the attention an argument would bring. Unfortunately even that was beyond what her parents were willing to give.

“I didn’t ask if you liked them. I told you to eat them.” Later, after dinner was cleared, the kitchen cleaned and her parents watching television in the next room she would kick the table leg rhythmically with the tip of her shoe watching the peas bounce against each other. She would take her fork and smash them into the plate, their sides splitting and green flesh spilling out. “Eat the peas Arabella or they’ll be waiting for you in the morning!” The edges of her mother’s voice sailing through the doorway over the muffled sounds of the television set felt like tiny knives up and down her arms. She pushed the plate forward and laid her head on the table in silent protest, knowing exactly what the cold peas would taste like gulped down with water the next morning and not caring.

Her father ran a consulting firm. He had a head for numbers and a firm grasp on the market. He was well-respected and his firm had netted their clients millions of dollars in revenue from their well-placed changes. He was proud of his work. It was essentially all he cared about. He was not an emotional man. He was sparing with his words, his advice, his affection. Her mother stayed home with her, hating every minute of it. Everything about her was cold and disapproving. Everything but her food. Yes, she was an excellent cook. She made Arabella oatmeal and blueberries in the mornings with a sprinkle of sugar on the top. Sometimes she made pancakes or french toast on weekends, the dough always gold and fragrant under the swirls of melted butter and caramel syrup. A cascade of soups- tomato bisque, cream of chicken, southwest chili- appeared on the table at lunchtime always with a side of four buttered crackers. Her dinners were flawless; tender slices of beef paired with roasted carrots and potatoes steamed from china plates. Bowls of clam chowder beckoned. Crisply fried chicken dripped deliciously onto neatly folded paper towels. It was as if her mother put all of the love she had into the food she cooked. There was none leftover for Arabella. Truthfully she had no need to smile. Her cherry pie smiled for her. She would stare angrily out the window, smoking her cigarettes. Almost as though she were waiting for something or someone to come and rescue her.

When Arabella became pregnant with Luke her mother sniffed and said to her father without looking at him “Well I could have told you that would happen.” Arabella stared at her mother, clutching her abdomen.

“My baby is not a mistake.” Tears slid from the corners of her eyes and tumbled over her quivering cheeks.

“Tell that to the rest of the world.” Her mother spit the sentence at her before getting up to clear the breakfast dishes.

Her father looked at his watch and then back at his article.

“You have always been a liability, Arabella. Twenty-four with no college degree, no job and now pregnant by a man who’d as soon slap you as look at you.”

“He’s rich and smart and he’ll marry me, you watch! I don’t need your judgment or your ridiculous pity! He loves me! He said so! I’ll never come back to you for anything ever again!” She yelled these words even as she herself did not quite believe them. He was rich alright and he’d probably marry her. But Love? That was a whole different story. She doubted he could truly love any woman. Not after the life he’d had. But she loved him. And in the back of her mind she swore she could make him love her back if a thing were even possible. She knew she was THE ONE. It just might take all she had to prove it to him.

*to be continued

June

I don’t want to be nice to you I say quietly beneath my breath
I hate you I say even softer and I mean it

Tonight a poem.

June

My mouth opened and nothing came out
I guess it was too much, all those words, all that screaming
A reaction to the sickening politeness I’m surrounded by…
It’s enough to make even the steeliest ones of us vomit glittery frustration… and still I climb out to find you.
I don’t want to be nice to you I say quietly beneath my breath
I hate you I say even softer and I mean it
And yet love pours out from somewhere I didn’t know existed
As the hands on your watch tick I let you hold me…as jumpy as a cat for the moment I am calm.
This doesn’t mean I forgive you I say. Needing to say something.
It doesn’t have to mean anything you whisper over my head and I still hear you.
At least for the moment I am not angry.
I can feel the breeze from the half open window. It blows the scent of roses into the room.
In the June half light this could be a scene from a movie. I decide to kiss you and so we do. To the onlooker we are lovely
Here in the hazy late afternoon we can be them.
The lovers.
At least until the sun goes down.

Kimkoa 2018

 

 

 

 

 

 

A Summer of Roses

You cannot breathe in and out without accepting death hides in every corner. It follows us on the wind whispering our name.

Roses make sense to me. Beautiful; all the colors of the rainbow. They smell heavenly. Try to pick one however and you’ll end up with fingers full of thorns. I love that. It’s as if they say you may look…but never touch.

I feel like the stem of a rose lately. I don’t want someone’s hand on my back. I avoid affection. It’s not a good feeling, being covered in thorns, but I relish my sharpness. I embrace being off-putting for once. For the first time I’m completely aware of what everyone wants from me. I just don’t care.

I spent half my life hanging in midair, waiting to be told what to do, where to go, how to feel. I smiled on command. I pleased people. I’m just not that girl anymore. I’m not interested in meeting other people’s needs. I need to soar unencumbered by the pressures of fitting in.

I have few friends. I think this is on purpose. Most people don’t understand me. I’m unusually kind, generous and fun to be around. So when they cross a line, when they hurt me, my kids or just piss me off in general by being inconsiderate, selfish or (my favorite) racist, and I tear into them mercilessly, they are genuinely shocked. How can she say those things? they ask themselves. I of course have an easy answer: Because they’re true and someone had to let you know eventually. You can’t just walk around being an asshole for the rest of your life and not have anyone call you on it.

Everything about the world is changing. That’s really the only constant. You never know what you’ll wake up to. It’s unsettling. However that is life. To live is to be unsettled. You cannot breathe in and out without accepting death hides in every corner. It follows us on the wind whispering our name. We none of us know when the clock strikes zero. This makes for a very strange and macabre existence. We dance on the tip of a blade in this life. Eventually we all stumble and fall.

My sons ask me questions I truly have to think about the answers to. Sometimes I feel pressure from them to be better than I am. But it never lasts. I give them my best answers and for the most part discuss with them what they think the answer is. I never forget they are old enough to alter the course of history. I remember being their age and full of questions. Full of hope. Excited about new developments, theories, discoveries. Adolescence is a magical time when truly anything seems possible. I miss that feeling.

There’s no hiding from a teenager. They see everything you think you’ve concealed so carefully. There’s no use protecting them from your pain. They just feel lied to. Most of the time I feel like I have my hands tied behind my back when it comes to my sons. They spend the school year with their father in Oregon and the brief time I have with them during holidays and part of the summer is almost a slap in the face. It’s not even enough time to feel like they’re wholly mine. That they haven’t chosen some other different, less colorful family to latch onto. Another mother to replace me with. An entirely different life I’m only allowed to see the edges of. Like a child standing on tiptoe desperate to see through the tear in the tent. The lions leaping through flaming hoops. The trapeze girls. The giant elephants with their daintily swinging tails.

This loss of so many moments of my sons’ lives will always be one my greatest sorrows. There are days when the pain is so great I try to swallow and it feels like knives in my throat. Those are the days I don’t talk to anyone. I give one word answers and make no attempt at conversation. Those are the days I feel hollowed out, so broken inside that it is as if all of my feelings have trickled through the cracks in my heart and made a crimson arc on the floor beneath my feet. I leave my feelings there, wet and sad. I want them to show, not me.

My daughter of course forces me to seal up the cracks in my broken heart. She has no patience for grief. She is too young to have lost profoundly. She makes me laugh when I think it least possible. She is not the least bit uncomfortable when I cry. She remains ready with kisses and little fingers that wipe away tears and with them my self doubt. Her belief in me is astonishing. I want to tell her how terribly flawed I am except she’d never believe me.

This summer had some beautiful moments. I breathed them in as deeply as I could. I swallowed them whole. There is no substitute for all of my children together laughing, smiling and being free. It’s a rarity now that I never take for granted. Each time I wonder if it will be the last. I think one day I’ll realize all I have are the memories and I’ll retreat into my thorny stem. Like the rose I’ll bloom for my children no matter how old they get. But no matter how beautiful my flower, once my children go their own ways my thorns will drive the world away without hesitation or remorse.

Planetary solitude and the power of individual expression

My words are mine. My feelings are mine. My expression is mine. I will wear what I want. I will say what I think. I will write what I feel.
My stories are not literal blocks of concrete meant to be carried around on one’s back. Rather they are pictures of emotions wrapped in my poetic language.
Do not censor my voice. Do not bind my fingers with your fear and misunderstanding. Your need to control. Allow me my freedom. My freedom to say what I want, when I want, how I want.
If you cannot understand metaphor. If you cannot understand the power of writing to release that which binds up inside and its ability to soothe the soul than say nothing to me. Because we exist on different planets and to bring us closer would take an act of God.

Kimkoa 2018

A Solitary Life

I’ve come to accept my days are lonely ones. That mine is the life of a writer, and it is a solitary life. I’ve come to realize that almost no one wants to hear the truth. Most especially not about themselves. 

It’s hard to put into words how much life can hurt sometimes. How it can kick you in the head, I’m at a point in my life where I don’t even know what the word friendship means. It seems like every person I truly open up to breaks my heart in some way and I don’t think this is unique to me. There are perhaps one or two people I can trust but the vast majority of people are so selfish, so full of holes they need to fill I end up getting broken in the process of trying to love them.

I’m angry that the world is not a better place. That people are not easier. I’ve come to accept my days are lonely ones. That mine is the life of a writer, and it is a solitary life. I’ve come to realize that almost no one wants to hear the truth. Most especially not about themselves.

Most of the time I’m crying on the inside. I wonder how many people feel like that? I walk around my garden and watch my flowers blooming and think what a world is this that you are stretching up into? When you are bipolar they give you bottles of pills. As if that were enough to fix it. And when those bottles of pills make you feel worse they give you more pills. And so on and so on, into infinity until you feel like some kind of tik-tok animated machine; click, click pop pill, click, clack. Sometimes I don’t want to take a crappy pill that makes me feel like a space cadet. I want to breathe the air. Or sleep. Or yell at someone. Anything but take another pill.

I invent projects for myself. Organize this shelf. Filter through these papers and toss the unnecessary ones. List everything we don’t need on marketplace. It’s my desperate attempt to feel useful. To feel like my time on earth has not been wasted. Lately my greatest hope is that my children turn out just enough like me to be creatively interesting but not so much like me as to be failures. This society has no patience for the creative yet broken ones of us. Entertain us! It screams. And keep your fucking self together! As if. As if that were even possible.

I’ve been sensitive my entire life. I spent my childhood on stage performing, making other people smile. Swallowing my fears and anxieties to create the pretty picture everyone wanted to see. But something happened. One day everything I had been shoving down day after day, month after month, year after year started coming back up. Bubbling and oozing at first, then bits began shooting out like lava from a volcano. It was a viscous and frightening rage so old and foul I wondered if it was entirely mine. And it wasn’t just rage. It was a howling and ancient sadness, from deep under the earth. It was the sadness all women share and yet hide from each other. The sadness and anger of a lost sisterhood. I wanted to scream it aloud. I wanted to call out its name from the highest place I could find. But no one wanted to listen. Because God forbid you mention it. Heaven help you if you even hint at its existence. Women don’t want to talk about what breathes just beneath their skin. About the lies they live and the fairytales they tell their daughters. Women don’t want to be reminded that behind their eyeshadow, under their mascara and their lipstick they are growing older. Losing their grip on the stares of young men. That under their skirts their asses are not as tight. That slowly they are becoming invisible and Goddamn it hurts.

In some cultures the old age of women is treated with reverence. They are considered precious. Indispensable. Wise. Not ours. Not in America the Beautiful. Here we try to outrun it. With surgeries and creams. With makeup that creates the illusion of youth. We pull the hairs from our chins and freeze our faces with needles full of botox. But even then, even then all of this is useless against the onslaught of time. Eventually we all surrender.

I had a nightmare last night that someone took a hook and shoved it up inside me and ripped open my uterus. In my dream it was the new birth control. I wonder if we are not so far from that. Women seem to be willing to do almost anything to their bodies to get what they want and men are as cruel as they have always been. In my dream I could feel Mother Earth groaning. A great collective nameless pain. I felt myself carried away on the waves of her sadness. It was my sadness. Our sadness that only I and She could feel.

I can barely tolerate kindness anymore. I’m so tired of explaining why it doesn’t make me happy. Why I haven’t gotten over the things I’ve lost. As if you ever get over them. I am learning to let go of certain things. The expectation of happiness. The warmth of friendship. The understanding of other people. The triumph of wisdom and truth. As I have said I hope to pass on my creativity and the joy of my early years to my children. But not my darkness. Not the hollow places of my soul I must outrun in order to keep breathing. Because for the creatively fragile a heart can only take so much. For the creatively fragile a heart is not made of steel, or some other unbreakable stuff. The heart bleeds. It trembles and sighs and breaks open. Despite our armor we are not so impenetrable as we would like to believe.

Maybe today there will be a break in the clouds. Maybe the sun will shine gently on my shoulders and my flowers will surround me as lost friends. Maybe my daughter will glow her perfect smile in my direction and for a moment I’ll be free of the truth of the world’s ugliness. One can only hope.

 

Bad Girl

He gave you flowers and they were perfect, beautiful and inside you screamed
Bad girl
He took you to lunch and the sun was shining brightly
But not for you
You stepped out on the deck and it disappeared never to return
He offered you his vest and you refused it. Preferring to feel like the ice inside you
Bad girl
He surprised you with a cake for the whole family and all you wanted to do was sleep
Sleep until the ocean rose up and covered you like a broken mermaid
Bad girl
You woke up and and painted your face with the smile they wanted
You swallowed your cake
You hugged your daughter
And all the while his sentence hung like mouldy ropes all around you
“She was a strong woman…unlike you”

Kimkoa 2018

Tank Girl

This disease of depression is internal. It cannot be caught and it cannot be cured. Those afflicted by it must learn to cope. They must become warriors.

I haven’t written anything in a while, I just haven’t been able to. I feel like my life has become this thing I never imagined it would be. My older children are stretched across the country, turning into other people. I see them and I feel like I’ve missed oceans of time with them. I literally drown in the spaces between my visits with them. Other mothers ask me how I handle it. I don’t handle it. I’m forced to deal with it, like being in prison. I say fuck a lot about almost everything. I cry. I go outside and dig in the dirt and plant shit so something beautiful grows. I manage my hatred. I’m angry about it all the time. I’m sad about it all the time. When they ask me this question I want to answer how the fuck do you think I handle it!?! I try not to run people over in the parking lot!

My husband and I are weathering the storms that come with poverty, change, family drama and raising children. He likes to hold hands. I don’t. I can’t stand it when he tries to dance with me in the kitchen. I don’t know why I can’t, I just can’t. I don’t feel romantic lately. I feel more like tank girl, when someone touches me who isn’t my child I want to pull out my gun.

I know this has to do with what’s going on inside me. I’ve been bleeding for months. literally months. My doctor wants to take out my uterus because of it. The irony is I can’t have my pre-op pap smear and exam because my damn uterus won’t stop bleeding. My husband tells me how cute my ass is. I tell him if I took my jeans off he’d faint. It’s like world war III down there. And yet I keep going. I keep doing the laundry. vacuuming the carpets. Doing the shopping. Cooking the meals. Doing the dishes. It’s almost become normal this bleeding. I’m forgetting what it was like before I bled like a stuck pig. It’s funny what you can get used to.

My daughter has chosen my husband as her favored parent. Considering how the rest of my life is going it makes perfect sense. While her father was working twelve hour days or sleeping or spending all night at poker games, I was the one who sang to her, gave her baths, fed her, held her at night. But of course none of that seems to matter lately. Although when she’s hurt or scared or has a nightmare she still calls for mommy. In the mornings I often wake up to her hot little body on my side of the bed. Those are the mornings i just want to push the pause button. I just don’t want anything to move, to change. Oh please I think, can’t this last forever.

I love to cuddle my husband’s legs. He was a roller skater for years and I always tease him that he has two tree trunks for legs. Laying in bed I’m always cold and I suffer from chronic claustrophobia so being held is out of the question. So I wind my legs around his and it’s the best feeling in the world. Like being rooted to the earth. My anxiety vanishes. The best is when he’s sleeping and I wiggle my legs between his. That combined with his soft snores is better than any valium.

My oldest son is here. He’ll be here for a month. He’s almost seventeen and is one of my favorite people on the planet. I adore him. I love the way he thinks; his artistic sensibilities, his kindness, his intelligence. I love that he’s driven and musical. I love that he’s so much like me and yet different in all the ways I hoped he’d be. Part of what makes him so special is that he had to battle his inner demons of depression. He’s had to work hard to become the person he is today. I read a book called In the Jaws of the Black Dogs: A Memoir of Depression by John Bentley Mays. At the time I read it I was so naive  about mental illness I was almost scared by the content of the book, by the experiences Mays related. Now that I am almost twenty years older and have battled mental illness for much of my adult life I have greater compassion for this man, There is more to this story. My son battles depression. I think about this book and I think about my handsome, creative, intelligent and talented son and my heart bursts with the emotion of it. This disease of depression is internal. It cannot be caught and it cannot be cured. Those afflicted by it must learn to cope. They must become warriors. Many of them do yoga. Many run. Many stay busy with projects, constantly creating, refuting the ever present voice whispering you are no good no good no good. You are worthless and everything you do is and will always be worthless. you may as well just give up…My son creates. Music. Films. Art. He skateboards. He eats as healthy as he can. He doesn’t drink, smoke weed. He stays busy. He outruns the “jaws of the black dogs” and for that I am in awe. I couldn’t be prouder.

I pray he stays ahead of the black dogs of depression as an adult. I pray he stays an example for others battling depression. There was a time when he we almost lost him. But the world needed him. Dammit I needed him! Fuck you black dogs! You may think you can catch my son but what you don’t realize is I will always be right there behind him armed to the teeth. Let’s see how well you do against my tank.

 

 

June

My mouth opened and nothing came out
I guess it was too much, all those words, all that screaming
A reaction to the sickening politeness I’m surrounded by…
It’s enough to make even the steeliest ones of us vomit glittery frustration… and still I climb out to find you.
I don’t want to be nice to you I say quietly beneath my breath
I hate you I say even softer and I mean it
And yet love pours out from somewhere I didn’t know existed
As the hands on your watch tick I let you hold me…as jumpy as a cat for the moment I am calm.
This doesn’t mean I forgive you I say. Needing to say something.
It doesn’t have to mean anything you whisper over my head and I still hear you.
At least for the moment I am not angry.
I can feel the breeze from the half open window. It blows the scent of roses into the room.
In the June half light this could be a scene from a movie. I decide to kiss you and so we do. To the onlooker we are lovely
Here in the hazy late afternoon we can be them.
The lovers.
At least until the sun goes down.

Kimkoa 2018