The Goodbye Song

I told you that words mattered, all those conversations were the reason I was falling. But I’ll give you this— you’re beautiful when it’s raining and there’s nothing but the weather.

There’s a future for us, but I’ll give it up and to know I saw it coming I’ve been through that. 

They can all see the way you’ve been watching me, seeing nothing but my absence….I’ve retreated. 

I told you that words mattered, all those conversations were the reason I was falling. But I’ll give you this— you’re beautiful when it’s raining and there’s nothing but the weather.

There’s a clock on the wall with a broken heart tired of tracking the illusion of our victory. 

I don’t know anymore why the earth still spins, you’re a coward and a bully— god I hate that.

You have to admit it was so good when we started, a real intoxication. And how many times did we try and fail together and take pictures of us laughing?

Oh can you feel it now?

What a pretty death.

I feel blown away—

Nothing gold can stay. 

A Summer of Roses

You cannot breathe in and out without accepting death hides in every corner. It follows us on the wind whispering our name.

Roses make sense to me. Beautiful; all the colors of the rainbow. They smell heavenly. Try to pick one however and you’ll end up with fingers full of thorns. I love that. It’s as if they say you may look…but never touch.

I feel like the stem of a rose lately. I don’t want someone’s hand on my back. I avoid affection. It’s not a good feeling, being covered in thorns, but I relish my sharpness. I embrace being off-putting for once. For the first time I’m completely aware of what everyone wants from me. I just don’t care.

I spent half my life hanging in midair, waiting to be told what to do, where to go, how to feel. I smiled on command. I pleased people. I’m just not that girl anymore. I’m not interested in meeting other people’s needs. I need to soar unencumbered by the pressures of fitting in.

I have few friends. I think this is on purpose. Most people don’t understand me. I’m unusually kind, generous and fun to be around. So when they cross a line, when they hurt me, my kids or just piss me off in general by being inconsiderate, selfish or (my favorite) racist, and I tear into them mercilessly, they are genuinely shocked. How can she say those things? they ask themselves. I of course have an easy answer: Because they’re true and someone had to let you know eventually. You can’t just walk around being an asshole for the rest of your life and not have anyone call you on it.

Everything about the world is changing. That’s really the only constant. You never know what you’ll wake up to. It’s unsettling. However that is life. To live is to be unsettled. You cannot breathe in and out without accepting death hides in every corner. It follows us on the wind whispering our name. We none of us know when the clock strikes zero. This makes for a very strange and macabre existence. We dance on the tip of a blade in this life. Eventually we all stumble and fall.

My sons ask me questions I truly have to think about the answers to. Sometimes I feel pressure from them to be better than I am. But it never lasts. I give them my best answers and for the most part discuss with them what they think the answer is. I never forget they are old enough to alter the course of history. I remember being their age and full of questions. Full of hope. Excited about new developments, theories, discoveries. Adolescence is a magical time when truly anything seems possible. I miss that feeling.

There’s no hiding from a teenager. They see everything you think you’ve concealed so carefully. There’s no use protecting them from your pain. They just feel lied to. Most of the time I feel like I have my hands tied behind my back when it comes to my sons. They spend the school year with their father in Oregon and the brief time I have with them during holidays and part of the summer is almost a slap in the face. It’s not even enough time to feel like they’re wholly mine. That they haven’t chosen some other different, less colorful family to latch onto. Another mother to replace me with. An entirely different life I’m only allowed to see the edges of. Like a child standing on tiptoe desperate to see through the tear in the tent. The lions leaping through flaming hoops. The trapeze girls. The giant elephants with their daintily swinging tails.

This loss of so many moments of my sons’ lives will always be one my greatest sorrows. There are days when the pain is so great I try to swallow and it feels like knives in my throat. Those are the days I don’t talk to anyone. I give one word answers and make no attempt at conversation. Those are the days I feel hollowed out, so broken inside that it is as if all of my feelings have trickled through the cracks in my heart and made a crimson arc on the floor beneath my feet. I leave my feelings there, wet and sad. I want them to show, not me.

My daughter of course forces me to seal up the cracks in my broken heart. She has no patience for grief. She is too young to have lost profoundly. She makes me laugh when I think it least possible. She is not the least bit uncomfortable when I cry. She remains ready with kisses and little fingers that wipe away tears and with them my self doubt. Her belief in me is astonishing. I want to tell her how terribly flawed I am except she’d never believe me.

This summer had some beautiful moments. I breathed them in as deeply as I could. I swallowed them whole. There is no substitute for all of my children together laughing, smiling and being free. It’s a rarity now that I never take for granted. Each time I wonder if it will be the last. I think one day I’ll realize all I have are the memories and I’ll retreat into my thorny stem. Like the rose I’ll bloom for my children no matter how old they get. But no matter how beautiful my flower, once my children go their own ways my thorns will drive the world away without hesitation or remorse.

Planetary solitude and the power of individual expression

My words are mine. My feelings are mine. My expression is mine. I will wear what I want. I will say what I think. I will write what I feel.
My stories are not literal blocks of concrete meant to be carried around on one’s back. Rather they are pictures of emotions wrapped in my poetic language.
Do not censor my voice. Do not bind my fingers with your fear and misunderstanding. Your need to control. Allow me my freedom. My freedom to say what I want, when I want, how I want.
If you cannot understand metaphor. If you cannot understand the power of writing to release that which binds up inside and its ability to soothe the soul than say nothing to me. Because we exist on different planets and to bring us closer would take an act of God.

Kimkoa 2018

Be Your Own Superhero

Doctors forget that these are our lives. That even a single memory is a priceless thing and to spin the roulette wheel with our minds is a cruel practice.

Tonight is one of those sleepless nights. Those toss and turn, mind racing and won’t turn off, husband snoring kind of nights. I don’t mind it for some reason. I just want to write anyways. I’ve been talking with my son. And not just talking. I’ve been listening. He is the type of child with a lot to say. At first you might think all he wants to do is talk the paint off the walls. But if you really listen to him, really listen, you realize he wants to be part of the conversation. The greater conversation. The one the adults are having about the world. About the way things are changing. About the political scene. He doesn’t want to just sit back and listen to rap music and eat hot pockets. Well, sometimes he does. But he also wants to listen to Ted Talks and podcasts about scientific experimental treatments for PTSD and Opioid addiction. He wants to learn about political systems and how they affect the way we live. Why the world’s government’s don’t work. He’s vocal and opinionated and not always right but it’s better isn’t it? That he cares? That he’s learning? Isn’t that what we want from children? To challenge us? To force us from the complacency of sameness with the wild and wonderful phrase “What if?”

What if that which we have always thought to be true was false? And it took a young, free-thinking mind to ask the necessary question “What if?”

He was talking tonight about experimental treatments with MDMA and Ecstasy and the success they are having treating anxiety conditions, OCD and PTSD. He was saying it’s groundbreaking. Like any parent my first response was to convince him that was hype for drug users and nothing worth his time but the more I talked to him the more I realized how informed he was and that he did know what he was talking about. “Mom.” He said. “This isn’t about going to a concert and getting some soda laced with God knows what. That shit can kill you and in fact it is killing kids, because that isn’t pure MDMA or ecstasy. It’s low grade nightmare shit with whatever inside it and it’s really sad because kids have no idea.” I’m talking about actual clinical scientific trials with pure substances used in a controlled environment on subjects who are experiencing relief for the first time in their lives. Mom I’m telling you if you want good drugs, go to the scientists.” I had to laugh at that one because he was right.

My son knows my struggle with medications. He knows I feel like a fat guinea pig they just stuff one pill after another down my throat. He knows I feel like Alice in Wonderland never knowing what my body will do next, one pill will make me grow fatter. Another will make me pace around the room. This pill will take away my appetite but my hair will fall out. Still another will make everything taste faintly of metal. And the treatment of all treatments is they could attach electrodes to my brain and send currents of electricity through my grey matter as a last ditch effort (yes, actually electrocute my mind) in the hopes that my thoughts would be shocked into compliance. Of course there is that pesky little side effect of memory loss. Memories like the scent of my first born child’s head when they placed him in my arms for the first time. The sound of my mother frying bacon on Sunday mornings as a little girl. The feeling of holding my father’s hands as he walked to the liquor store. I always got to pick out a lollipop. My daughter’s middle name. How as a baby she would cry incessantly unless I played Fiona Apple’s Extraordinary Machine over and over and over while I wore her in a sling. The first time my husband held my hand, kissed me.

I’ll never forget sitting there reading about how sometimes you lose your memories for a time but they come back. However in many cases they don’t. My doctor was so confident my memory loss would be minimal. But what does that mean? Which memory isn’t worth keeping? My mother’s genuine loving smile at my first piano recital when I hid behind the garbage cans? My oldest son deciding to take a bath in the middle of his fifth birthday, ignoring all of his friends? My youngest son carrying around a red velvet notebook he got from his teacher at Butterfly daycare center writing little notes and pictures long before kindergarten? That he was born with blue eyes?

Doctors forget that these are our lives. That even a single memory is a priceless thing and to spin the roulette wheel with our minds is a cruel practice. I have had enough of being a plaything for the ignorant. My body is not a toy. I am not a lab rat. I am done swelling up like a sad balloon, I am done being too exhausted to play with my daughter and I am done swallowing pill after pill after pill. By the way these pills are prescribed only 30 at a time at all different times with no refills from a doctor who works only one day a week from an office that takes up to a week to refill them and she has to sign off on each one through insurance that won’t pay until two days before they are due so that I’m constantly on the phone with either the doctor’s office, the pharmacy or the insurance company and I’m constantly getting lectured about running out or trying to refill too soon or any number of stupid and demeaning things they like to say to me on a regular basis, every single month of my life. I literally can’t take it anymore. And it makes me so angry because this is how patients fall through the cracks. It’s not the patients its the goddamn overmedicating doctors who just stop paying attention.

You know when I feel happiest? When I run my fingers over flowers that have just bloomed in my garden. When I clip my basil and put it in the sauce I’m making for my family. When I discover the first rose of the season and clip it and put it in a mug and it smells like heaven. When I make my son and I chocolate mint tea from leaves I grew. When I am surrounded by the quiet harmony of the life my mother and I created from seeds we started on folding tables in the great room of the house.

Do I still have bipolar? Yes. Do I take a medication called lithium? Yes? However I asked for it specifically because it’s an ancient natural remedy. People have been bathing in lithium waters for centuries to help find balance. It’s a salt. I do feel sometimes all this other shit I’m taking is not helping me at all. However I remember that I am bipolar and bipolar people hate taking their medication. Let me say that again. Bipolar people HATE taking their medication! The sad fact is that many of us do need those meds to keep from flying off into truly frightening states of mind. I have been there. I cannot deny that. This being said my opinion does matter. How I feel and what is happening to my body is important. My doctor and I must work together. My healthcare is truly a joint venture, not just one individual’s responsibility. It is possible to take less medication but that means it needs to be under my doctor’s supervision and with her consent. In addition I need to do my part here at home. I need to eat well. I need to sleep enough and consistently. I need to make sure my environment is peaceful, positive, stress-free. I need to go to therapy and talk about my feelings even when I’d rather hide under the bed with my cat.

When I’m in my doctor’s office and she’s asking me how I’m doing and prescribing me these pills I hate, if I don’t use my voice, if I don’t share my pain then I have no one to blame but myself. One of the many things I have learned from my son is that when something is not working he is NOT quiet about it. And as a result he gets his needs met. I need to take a page out of his book. Wishin’ and hopin’ and prayin’ and dreamin’ isn’t getting me very far. The time has come to be my own hero. It’s what I’d tell my daughter to do. Sometimes no one comes to rescue you and you have to pull up your boot straps and rescue yourself.

 

 

 

Problem Child

At forty-one I don’t bend myself into weird positions just to get people to like me anymore. I’m just over it. My daughter doesn’t bend herself for others either. You can choose to follow her lead or get the hell out of her way.  

So my daughter has become a “problem child” at preschool. She started out her preschool career as an “angel.” In the beginning I would go to pick her up and her teacher Miss Cheryl would tell me her days would be perfect if the class were made up of little Alices. Needless to say she does not say this anymore. After talking with her this morning and hearing about Alice’s behavior in school my heart sank. Of course I came up with a million and one reasons why this was my fault and after ruminating and coming up with a million and one reasons mentally why my daughter was failing preschool on the way home from dropping her off, I pulled into the driveway, ran up the stairs and talked to my mother who luckily happened to be home sick from work. (Let me tell you, having a mother with a doctorate in psychology who used to teach preschool can really come in handy.) After relating the troubles Alice and a friend of hers who is the same age is having in the classroom to my psychologist mother she listened intently and simply said- “she’s bored.”

“Bored?” I said, not having considered this as a possibility but instantly agreeing with the idea.

“Of course. She’ll be five in less than a month. She’s going to school with three year olds. She’s bored out of her mind! She should be in the school-age room. She starts kindergarten at the end of August. It’s June.”

“Ohhhhhh.” Duh. Why did I not think of this before? When her well-meaning but over-worked teacher was telling me how she won’t stay on her cot at nap time. Well, yeah. Because she’s outgrown it.

“You need to call them and tell them to put her in the school-age room. Especially if she’s having problems. She’s only got a month left and she’s going to give them hell. The other day I was there watching her trying to color and a little girl who must have been about 3 years old kept stealing her markers and Alice finally had enough and pushed her. Her teacher said ‘Now Alice we talked about this, she’s never been in school before.’ I was like, Oh my god, no wonder she’s running out of patience. She’s going to school with babies!’ “ My mom had an excellent point. No kid is going to stay bored for long. They’ll entertain themselves one way or another. Jesus, I thought. Why don’t they move them at four and a half at least? My daughter reads. She can do simple math. She paints her nails. She swears. (You want to judge me about that, guess how much of a shit I give) She has fashion sense. She wears lip gloss. She is well beyond a room full of three year olds. Again I really don’t care if you think there’s a problem with that. I think you know what you can do with your opinion.

Of course I’ve long given up on the structure of this particular daycare. They put more energy into their appearance than they do into their actual program. And of course it’s the staff working with the kids that suffer. They don’t get they support they need, it’s like a revolving door for workers and for the ones who have been there consistently and are depended on it truly isn’t fair, they really get overworked. The admin staff sure wants parents to think they’re dropping their kids off into some kind of preschool/kindergarten hybrid, but its just a daycare. A daycare. Oh they want you to think it’s a real school. They spin you a yarn about curriculum and training and certification. They have a lot of stupid I repeat STUPID policies to make you think it’s a school. But truthfully, It’s a daycare just like any other daycare where the kids run around and smack each other with barbies and toy cars and eat orange slices and fill their pockets with rocks on the playground that then end up on the floor of your car. Sure they memorize a word or two in Spanish and practice counting to 20 and glue cotton balls and felt to construction paper, so you feel like your money is spent on something more than just glorified babysitting, but truthfully it’s not. What you’re really paying for is socialization and the ability to do things without your child. Honestly your child won’t emerge anymore of an Einstein than the child who stayed home with their parents until kindergarten. And depending on the parents that other child who stayed home just might be farther ahead. Like way farther ahead.

So anyways I have no illusions about my daughter’s daycare. She’s there because she loves being around other kids, she’s easily bored and I need time to get things done during the day that don’t involve her. Things like writing and gardening. And sitting on the couch for longer than ten minutes without hearing “Mommy play with me!”

This is not to say there aren’t excellent preschools that don’t have fancy curriculums with detailed, well-thought out programs that are designed to enhance the development of the preschool brain at each level and my daughter has actually had the benefit of participating in one such program. But it lasted only a few hours a day, it was extremely expensive, and every kid in there came from such a wealthy and un-relatable family she didn’t end up making a single friend. She just didn’t fit in with such a demographically homogenous group which is a fancy way of saying “all rich white kids” and I definitely did not fit in with their rich stay-at-home mothers. Nor did I feel like trying. At forty-one I don’t bend myself into weird positions just to get people to like me anymore. I’m just over it. My daughter doesn’t bend herself for others either. You can choose to follow her lead or get the hell out of her way.

Anyways she’s got until the end of August and then she’ll be in kindergarten, raising hell and challenging her teachers with her wild and witty wonderful way of learning, understanding, becoming, experimenting, leading, being fierce, being beautiful, excelling, exceeding, paving the way for the rest of the ones who love her and follow in her footsteps. She’ll be creating new avenues her teachers never thought of and they can fight her or embrace her just like every problem child that ever was.

A Solitary Life

I’ve come to accept my days are lonely ones. That mine is the life of a writer, and it is a solitary life. I’ve come to realize that almost no one wants to hear the truth. Most especially not about themselves. 

It’s hard to put into words how much life can hurt sometimes. How it can kick you in the head, I’m at a point in my life where I don’t even know what the word friendship means. It seems like every person I truly open up to breaks my heart in some way and I don’t think this is unique to me. There are perhaps one or two people I can trust but the vast majority of people are so selfish, so full of holes they need to fill I end up getting broken in the process of trying to love them.

I’m angry that the world is not a better place. That people are not easier. I’ve come to accept my days are lonely ones. That mine is the life of a writer, and it is a solitary life. I’ve come to realize that almost no one wants to hear the truth. Most especially not about themselves.

Most of the time I’m crying on the inside. I wonder how many people feel like that? I walk around my garden and watch my flowers blooming and think what a world is this that you are stretching up into? When you are bipolar they give you bottles of pills. As if that were enough to fix it. And when those bottles of pills make you feel worse they give you more pills. And so on and so on, into infinity until you feel like some kind of tik-tok animated machine; click, click pop pill, click, clack. Sometimes I don’t want to take a crappy pill that makes me feel like a space cadet. I want to breathe the air. Or sleep. Or yell at someone. Anything but take another pill.

I invent projects for myself. Organize this shelf. Filter through these papers and toss the unnecessary ones. List everything we don’t need on marketplace. It’s my desperate attempt to feel useful. To feel like my time on earth has not been wasted. Lately my greatest hope is that my children turn out just enough like me to be creatively interesting but not so much like me as to be failures. This society has no patience for the creative yet broken ones of us. Entertain us! It screams. And keep your fucking self together! As if. As if that were even possible.

I’ve been sensitive my entire life. I spent my childhood on stage performing, making other people smile. Swallowing my fears and anxieties to create the pretty picture everyone wanted to see. But something happened. One day everything I had been shoving down day after day, month after month, year after year started coming back up. Bubbling and oozing at first, then bits began shooting out like lava from a volcano. It was a viscous and frightening rage so old and foul I wondered if it was entirely mine. And it wasn’t just rage. It was a howling and ancient sadness, from deep under the earth. It was the sadness all women share and yet hide from each other. The sadness and anger of a lost sisterhood. I wanted to scream it aloud. I wanted to call out its name from the highest place I could find. But no one wanted to listen. Because God forbid you mention it. Heaven help you if you even hint at its existence. Women don’t want to talk about what breathes just beneath their skin. About the lies they live and the fairytales they tell their daughters. Women don’t want to be reminded that behind their eyeshadow, under their mascara and their lipstick they are growing older. Losing their grip on the stares of young men. That under their skirts their asses are not as tight. That slowly they are becoming invisible and Goddamn it hurts.

In some cultures the old age of women is treated with reverence. They are considered precious. Indispensable. Wise. Not ours. Not in America the Beautiful. Here we try to outrun it. With surgeries and creams. With makeup that creates the illusion of youth. We pull the hairs from our chins and freeze our faces with needles full of botox. But even then, even then all of this is useless against the onslaught of time. Eventually we all surrender.

I had a nightmare last night that someone took a hook and shoved it up inside me and ripped open my uterus. In my dream it was the new birth control. I wonder if we are not so far from that. Women seem to be willing to do almost anything to their bodies to get what they want and men are as cruel as they have always been. In my dream I could feel Mother Earth groaning. A great collective nameless pain. I felt myself carried away on the waves of her sadness. It was my sadness. Our sadness that only I and She could feel.

I can barely tolerate kindness anymore. I’m so tired of explaining why it doesn’t make me happy. Why I haven’t gotten over the things I’ve lost. As if you ever get over them. I am learning to let go of certain things. The expectation of happiness. The warmth of friendship. The understanding of other people. The triumph of wisdom and truth. As I have said I hope to pass on my creativity and the joy of my early years to my children. But not my darkness. Not the hollow places of my soul I must outrun in order to keep breathing. Because for the creatively fragile a heart can only take so much. For the creatively fragile a heart is not made of steel, or some other unbreakable stuff. The heart bleeds. It trembles and sighs and breaks open. Despite our armor we are not so impenetrable as we would like to believe.

Maybe today there will be a break in the clouds. Maybe the sun will shine gently on my shoulders and my flowers will surround me as lost friends. Maybe my daughter will glow her perfect smile in my direction and for a moment I’ll be free of the truth of the world’s ugliness. One can only hope.

 

Bad Girl

He gave you flowers and they were perfect, beautiful and inside you screamed
Bad girl
He took you to lunch and the sun was shining brightly
But not for you
You stepped out on the deck and it disappeared never to return
He offered you his vest and you refused it. Preferring to feel like the ice inside you
Bad girl
He surprised you with a cake for the whole family and all you wanted to do was sleep
Sleep until the ocean rose up and covered you like a broken mermaid
Bad girl
You woke up and and painted your face with the smile they wanted
You swallowed your cake
You hugged your daughter
And all the while his sentence hung like mouldy ropes all around you
“She was a strong woman…unlike you”

Kimkoa 2018

Tank Girl

This disease of depression is internal. It cannot be caught and it cannot be cured. Those afflicted by it must learn to cope. They must become warriors.

I haven’t written anything in a while, I just haven’t been able to. I feel like my life has become this thing I never imagined it would be. My older children are stretched across the country, turning into other people. I see them and I feel like I’ve missed oceans of time with them. I literally drown in the spaces between my visits with them. Other mothers ask me how I handle it. I don’t handle it. I’m forced to deal with it, like being in prison. I say fuck a lot about almost everything. I cry. I go outside and dig in the dirt and plant shit so something beautiful grows. I manage my hatred. I’m angry about it all the time. I’m sad about it all the time. When they ask me this question I want to answer how the fuck do you think I handle it!?! I try not to run people over in the parking lot!

My husband and I are weathering the storms that come with poverty, change, family drama and raising children. He likes to hold hands. I don’t. I can’t stand it when he tries to dance with me in the kitchen. I don’t know why I can’t, I just can’t. I don’t feel romantic lately. I feel more like tank girl, when someone touches me who isn’t my child I want to pull out my gun.

I know this has to do with what’s going on inside me. I’ve been bleeding for months. literally months. My doctor wants to take out my uterus because of it. The irony is I can’t have my pre-op pap smear and exam because my damn uterus won’t stop bleeding. My husband tells me how cute my ass is. I tell him if I took my jeans off he’d faint. It’s like world war III down there. And yet I keep going. I keep doing the laundry. vacuuming the carpets. Doing the shopping. Cooking the meals. Doing the dishes. It’s almost become normal this bleeding. I’m forgetting what it was like before I bled like a stuck pig. It’s funny what you can get used to.

My daughter has chosen my husband as her favored parent. Considering how the rest of my life is going it makes perfect sense. While her father was working twelve hour days or sleeping or spending all night at poker games, I was the one who sang to her, gave her baths, fed her, held her at night. But of course none of that seems to matter lately. Although when she’s hurt or scared or has a nightmare she still calls for mommy. In the mornings I often wake up to her hot little body on my side of the bed. Those are the mornings i just want to push the pause button. I just don’t want anything to move, to change. Oh please I think, can’t this last forever.

I love to cuddle my husband’s legs. He was a roller skater for years and I always tease him that he has two tree trunks for legs. Laying in bed I’m always cold and I suffer from chronic claustrophobia so being held is out of the question. So I wind my legs around his and it’s the best feeling in the world. Like being rooted to the earth. My anxiety vanishes. The best is when he’s sleeping and I wiggle my legs between his. That combined with his soft snores is better than any valium.

My oldest son is here. He’ll be here for a month. He’s almost seventeen and is one of my favorite people on the planet. I adore him. I love the way he thinks; his artistic sensibilities, his kindness, his intelligence. I love that he’s driven and musical. I love that he’s so much like me and yet different in all the ways I hoped he’d be. Part of what makes him so special is that he had to battle his inner demons of depression. He’s had to work hard to become the person he is today. I read a book called In the Jaws of the Black Dogs: A Memoir of Depression by John Bentley Mays. At the time I read it I was so naive  about mental illness I was almost scared by the content of the book, by the experiences Mays related. Now that I am almost twenty years older and have battled mental illness for much of my adult life I have greater compassion for this man, There is more to this story. My son battles depression. I think about this book and I think about my handsome, creative, intelligent and talented son and my heart bursts with the emotion of it. This disease of depression is internal. It cannot be caught and it cannot be cured. Those afflicted by it must learn to cope. They must become warriors. Many of them do yoga. Many run. Many stay busy with projects, constantly creating, refuting the ever present voice whispering you are no good no good no good. You are worthless and everything you do is and will always be worthless. you may as well just give up…My son creates. Music. Films. Art. He skateboards. He eats as healthy as he can. He doesn’t drink, smoke weed. He stays busy. He outruns the “jaws of the black dogs” and for that I am in awe. I couldn’t be prouder.

I pray he stays ahead of the black dogs of depression as an adult. I pray he stays an example for others battling depression. There was a time when he we almost lost him. But the world needed him. Dammit I needed him! Fuck you black dogs! You may think you can catch my son but what you don’t realize is I will always be right there behind him armed to the teeth. Let’s see how well you do against my tank.

 

 

June

My mouth opened and nothing came out
I guess it was too much, all those words, all that screaming
A reaction to the sickening politeness I’m surrounded by…
It’s enough to make even the steeliest ones of us vomit glittery frustration… and still I climb out to find you.
I don’t want to be nice to you I say quietly beneath my breath
I hate you I say even softer and I mean it
And yet love pours out from somewhere I didn’t know existed
As the hands on your watch tick I let you hold me…as jumpy as a cat for the moment I am calm.
This doesn’t mean I forgive you I say. Needing to say something.
It doesn’t have to mean anything you whisper over my head and I still hear you.
At least for the moment I am not angry.
I can feel the breeze from the half open window. It blows the scent of roses into the room.
In the June half light this could be a scene from a movie. I decide to kiss you and so we do. To the onlooker we are lovely
Here in the hazy late afternoon we can be them.
The lovers.
At least until the sun goes down.

Kimkoa 2018

Making the World Over

Raising children in this society parents are faced with the challenge of teaching their children to learn how to manage the delicate balance of individual expression with social acceptance.

The worst thing about makeover shows is that they focus so heavily on our innate fears about what other people think about us. The people on the shows are sometimes truly helped but at what cost? Losing their individuality? How much does it matter what the general public thinks about an individual? Sadly, it does matter, one might argue it matters greatly for the individual’s survival. Even if someone exists on the fringe and becomes successful for being a sort of antihero, feeding off the negativity of some and the praise of others, that praise keeps them afloat. However praise is earned it is necessary. There are those who remove themselves entirely from society and live “off the grid” subsisting solely in nature. This might be the only answer to the pressure of social norms the rest of us face, and not a thing possible or desirable for the great majority of us.

Raising children in this society parents are faced with the challenge of teaching their children to learn how to manage the delicate balance of individual expression with social acceptance. We have to teach our children how to create the kind of world they want to live in which does require challenging and changing social norms. However, it is not so easy changing things. My father used to tell me that if one wants to effect change, one must do it from the inside out rather than from the outside in. His mission was to change the way people viewed him and other black people by empowering disadvantaged youth of color through increasing their educational opportunities. He wanted the world to see that anyone could achieve with the right set of circumstances. He himself was something of an anomaly having suffered through a terrible childhood, yet he took the example set by his mother who died when he was very young and used it as his reason to achieve in life. Not everyone is able to push themselves in such a way. As an adult I can see the wisdom in his words and how they guided the way he lived his life. In the same way my father wanted to effect change from the inside out, focusing on working with children and educators, I find myself wanting to do the same.

Another lesson both my parents taught me is that it isn’t about the cards you are dealt but how you play the game. Like my father, my mother is a shining example of this, as someone who pushed herself forward to achieve despite personal hurdles, someone who has given me every reason to believe that it doesn’t matter what cards you are dealt, what matters is what you do with them. I have watched her teach this lesson over and over as her work has been with people struggling with addictions, mental and physical illnesses, disabilities and disadvantaged youth. She also worked with the criminal element of society and the same lessons apply. In her own way she is also changing the system from the inside out as my father did, showing the world that a woman can work successfully as a psychologist in various fields while at the same time raising a daughter and climbing mountains both literally and metaphorically. I myself am now climbing my own mountains, as I fight to change the stigma associated with mental illness in our society. I realize this is a thing one can only do when one has a foot in both worlds. You have to be able to get yourself heard by those in positions of power. Not everyone can do this. For those who are so profoundly affected by their mental illness, or who are for various reasons unable to speak for themselves about their mental illness, I feel a great sense of duty to speak out about mine in the hopes that someone powerful enough to change things will hear my soul’s cry.

Raising awareness about the struggles of managing mental illness in this society is a passion of mine since I was diagnosed with bipolar I with psychotic features. Before this diagnosis, before my bipolar had worsened to the degree where I found myself hospitalized, I lived with a sense of ignorance in a way. I was unaware of how difficult life really is for people battling mental illness. It’s not just the illness that profoundly affects one’s life but the social stigma that goes along with it. It’s a double whammy so to speak. I have written before about how so many of us are afraid to speak out about the struggles we face because of social pressure. This is a very real and legitimate concern because since I have “come out of the closet” so to speak about my illness, I have faced judgment from people who don’t understand and actually lost friendships. The process has been worth it though, because the friends who are still standing by my side are my true friends and I have no doubts that they love me. I’ve also had people reach out to me and tell me that their lives have been changed for the better by my activism and that is worth a thousand rejections from the ignorant masses.

Another factor when considering effecting change is that it be real and lasting. I often wonder when watching these makeover shows how many of the people go back to their lives and resume their old fashion habits. There is a new show on Netflix called “100% Hotter” and the makeovers are designed to bring people who make extreme fashion choices closer to the norm. I was watching it and one of the people getting “makeunders” received a haircut and color that I couldn’t imagine her maintaining after leaving the show without paying an arm and a leg. It seems cruel to create an ideal that is impossible for the person to achieve on their own without the assistance of the show. Likewise another girl’s makeup was done by an expert with expert techniques and expensive makeup that she likely would not be able to recreate or afford on her own.

Similar to the trouble with creating real and lasting change for someone on a superficial level, it is even more difficult to create that level of change on a deep and meaningful level. Change requires effort. You have to try. You have to move long stuck ideas from the back of your mind to make room for new ones. In my case, when I got sick I realized I had friends who could not accept me with an illness. It was a sobering and painful realization to experience. They could not make room in their lives for someone with bipolar even though that person was one of their closest friends. They had beliefs about people “like me” that they were either unable or unwilling to let go of. The difficulty is how to move those kind of people forward mentally. For me, it is less about them and more about empowering other people like me and educating those people who are willing to grow and change and accept new ideas that may challenge social norms. Once enough people who are able to embrace change do so and break down the old stigmas and barriers, creating a new social norm, the people who were so stuck will have no choice but to change or face being the social outcasts they once hated. Until then I will keep fighting the good fight. I will keep working to change one mind at a time and make the world over until it is a better place to be.